Program

Introduction

Prof. Dr. Karl Lauterbach, MdB Federal Minister of Health of the Federal Republic of Germany,

Marie-Therese Burka, Chief Operations Officer/COO WE&ME Foundation, Vienna, Austria,

Chantal Britt, 2023 Viktor Award Winner and founder of Patient Organization Long Covid Switzerland,

Ed Yong, science journalist and Winner of 2021 Pulitzer Prize for Explanatory Reporting for a series on the COVID-19 pandemic,

Jordon Steele-John, Member of Australian Greens, Senator for Western Australia, Perth, Australia,

Senator Dr. Stan Kutcher, Senator for Novia Scotia, Canada,

Dr. Maria Van Kerkhove, Director at Epidemic & Pandemic Preparedness & Prevention at WHO, Geneva, Switzerland.

More speakers to be announced soon.

Immunology of Long Covid

Prof. Daniel M. Altmann, Departement of Immunology and Inflammation, Imperial College, Faculty of Medicine, London, UK

Design and preliminary results of a patient-driven "grassroots" clinical trial in a Belgian Long Covid cohort

Johan Van Weyenbergh, Laboratory of Clinical and Epidemiological Virology Department of Microbiology, Immunology and Transplantation Rega Institute for Medical Research, Leuven, Belgium

ME/CFS as part of the post-COVID spectrum

Prof. Dr. Carmen Scheibenbogen, Head of Immunodeficiency Outpatient Clinic Charité Berlin, Germany

Skeletal muscle function and post-exertional malaise in patients with Long-COVID

Dr. Rob Wüst, Assistant-Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands

The role of microclots and platelet hyperactivation in LongCovid thrombotic endothelialitis

Prof. Dr. Resia Pretorius, Professor of Physiological Sciences at Stellenbosch University, South Africa

Targeting the HDL Proteome for the Treatment of Post-COVID Syndrome

Prof. Dr. Bernhard Schieffer, Director University Heart Center Department of Cardiology, Angiology and Critical Care Medicine University Hospital, Marburg, Germany

A Patient Scientist: Navigating Academia with Long Covid

Abigail Koppes, PhD, Associate Professor of Chemical Engineering, Northeastern University, Boston, USA

A former professional athlete discusses her experience of Long Covid, the role of exercise and participatory research methods.

Oonagh Cousins, Visiting Research Fellow, University of Oxford, Ambassador for the Charity Long Covid Support, Oxford, UK

Wail of a Tale discusses how they became embedded with the LC community and shares stories of women from marginalized communities

Marty Pack, M.A. Founder, Executive Director and Creative Producer Wail of a Tale Productions, non-profit educational documentary film organization, Ohio, USA

From PASC Cardiovascular Involvement to Myoflame-19 RCT

Assoc. Prof. Dr. Valentina Puntmann, MD, PhD, FRCP, Associate Professor at the Institute of Experimental and Cardiovascular Imaging, University Hospital Frankfurt, Germany

Pathogen persistence in Long Covid and ME/CFS: evidence and research considerations

Amy Proal, PhD, President/Chief Scientific Officer PolyBio Research Foundation, Boston, USA

Immunomodulation in Long Covid: the REVERSE-LC study as a pathway to discovery

Prof. E. Wesley Ely, MD MPH, Professor of Medicine, Vanderbuilt University Medical Center, Co-Director of CIBS Center, Nashville, USA

Immunology of Post-Acute Infection Syndromes

Prof. Akiko Iwasaki, PhD, Sterling Professor of Immunobiology, Yale University
Investigator, HHMI, Connecticut, USA

Catalyzing change with patient/caregiver led research

Tess Falor, PhD, Renegade Research and RemissionBiome founder, Denver, USA
Isabel Ramirez-Burnett, NBC-HWC, AIP-C Renegade Research CEO & RemissionBiome project director, Rhode-Island, USA

Focus on Treatments and a Cure using Old Ideas and New Ideas

Prof. Dr. Ron Davis, Professor of Biochem and Genetics at Standford, Director at Genome Tech Ctr, MECFS Collaboartive Research Ctr and OMF Scientific Advisory Board, Stanford, USA

A new frontier or the Same as Ever- Phenotyping based on responses to exertion (commonly) infection associated chronic conditions

Prof. Dr. Todd Davenport, Professor and Vice Chair, Departement of Physical Therapy at University of the Pacific in Stockton, USA

The role of CPETS in determining the pathophysiology of Long Covid – the importance and need for objective caution

Prof. Dr. Mark Faghy, Professor of Clinical Exercise Science Biomedical and Clinical Research Theme University of Derby, Derby, UK

Patient Led Research Collaborative Reinfections Study: Studying the effect of reinfections on measures of post-exertional malaise (PEM)

Megan L. Fitzgerald, PhD, Patient Led Research Collaborative Reinfections Study Co-Lead

Maintaining one's own identity despite PEM - How can psychotherapy support this?

Bettina Grande, Psychological psychotherapist practising in Heidelberg, Germany

Occupational and Physical Therapy Perspective: Introductory Guide to Post-Exertional Malaise and Pacing for PEM

Clayton Powers, DPT, Doctor of Physical Therapy University of Utah, Salt Lake City, USA,

Amy Mooney, MS OTR/L, Occupational Therapist, Chicago, USA

Unlocking wearable technology to measure and manage Long Covid

Harry Leeming, Founder of Visible, USA

The Long Covid Toolkit. Empowering people with Long Covid and their caregivers with actionable knowledge and tools

Edo Plantinga, Project Manager and Founder of Long Covid Toolkit;

Joanneke van Der Nagel, MD, PhD, Epidemiologist, Psychiatrist, Researcher, Founder of Long Covid Toolkit

Long Covid Phenotyping as an aid to successful treatments

Dr. Rae Duncan, Consultant Cardiologist and Long Covid Research Clinician, Newcastle Hospitals NHS Foundation Trust, UK

New Zealand's Long Covid Landscape - from recognition to biomedical research - an overview

Anna Brooks, PhD, Senior Lecturer and Director at Auckland Cytometry, University of Auckland, New Zealand

Practical insight: Severe LC Kids, parent full time caregiver, diagnostic odyssey

Erin Godwin, Mother and Carer of a very severely ill child suffering from Long Covid

Is there a stigma of Long Covid?

Prof. Dr. Georg Schomerus, Professor and Chair, Departement of Psychiatry and Psychotherapy, University of Leipzig, Germany

Unmet needs and stigmatization of people suffering from long COVID after vaccination

Fiona Campbell, former nurse, Long COVID after vaccination, member of UK CV family/ Irish Covid Vaccine Clan, Ireland and UK

Holism done right: addressing psychic trauma in LC and ME/CFS

Tom Molmans, MD, Psychiatrist, Long Covid and ME/CFS patient, research consultant for the Dutch Long Covid Foundation

A Longitudinal Perspective on ME/CFS

Jeff Lubell, parent and caregiver of a young adult with ME/CFS and other chronic conditions

The most severely affected - A caregiver's perspective

Dr. Sabine Hermisson, Mother and Carer of a very severly ill ME Patient and advocate, Vienna, Austria

Precision Medicine for Long Covid and ME/CFS: A New Understanding of the Disease Biology.

Sayoni Das, PhD, SVP of Bioinformatics at PrecisionLife, Oxford, UK

Is there a link between auto-immunity and Long COVID?

Dr. Jeroen den Dunnen, immunologist and Principal Investigator at Amsterdam University Medical Center, location AMC, University of Amsterdam, Netherlands

Deformability Cytometry, from bench to bedside

Martin Kräter, PhD, Postdoctoral Research Fellow at Max Planck Institute for the Science of Light, Erlangen, Germany

Vascular regulation disorder in Post COVID disease and ME/CFS

Dr. med Michael Kacik, Specialist in Internal Medicine and Angiology and Specialist in General Medicine, Münster, Germany

PAIS-demystifying diagnosis, pathobiology and treatment

Dr. David Putrino, Director of Rehabilitation Innovation at Icahn School of Medicine at Mount Sinai, New York City, USA

Insights from Clinical Practice. A discussion.

Dr. Michael Stingl, Specialist in Neurology, Vienna, Austria
Dr. Michael Kacik, Specialist in Internal Medicine and Angiology and Specialist in General Medicine, Münster, Germany

Overlapping and differentiating biological features of ME/CFS and Long Covid

Bhupesh K. Prusty, PhD, Professor of Science, Riga Stradins University, Riga, Latvia

Living With Long Covid: A patient perspective

Pam Bishop, PhD, Long Covid Patient, Tennessee, USA

Clinical and Research Efforts from the Stanford Long Covid Collaborative

Linda N. Geng, MD, PhD, Clinical Associate Professor at Stanford University and Co-Director Post-Acute COVID-19 Syndrome Center, California, USA

"Wake up call"

Paul Hennessy, Long Covid Advocate, California, USA

How Long Covid researchers are repeating the ME/CFS Biopsychosocial Playbook

David Tuller, Dr. Ph., Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley, USA

Sars-CoV-2 neuroinvasive potential and associated Neuroinflammation as possible mechanisms of underlying brain fog and cognitive dysfunction in Long Covid patients

Dr. Danielle Beckman, Neuroscientist, University of California, Davis, USA

"Long Covid and the brain": a neuroimmunopsychiatry account

Dr. Daniel Martins, MD PhD, Senior Research Fellow Departement of Neuroimaging, Institute of Psychiatry, Psychology and Neuroscience, King’s College, London, UK

The price paid when your immune system misfires

Dr. Anne Maitland, Director, Allergy & Immunology Services, Metrodora Institute, Asst. Professor, Icahn School of Medicine at Mt Sinai, New York, USA

UniteToFight2024

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