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17 CME points


Blending research, stories, and patient engagement to drive change Together on a Mission

Our program comprises a special mix of expert insights, personal stories, and cutting-edge research blending in with modern patient engagement approaches and grassroots movements, making it a unique and valuable resource for bringing together those passionate driving change. We aim to transform unmet needs into opportunities, highlight social impacts and provide a platform to address innovative solutions for Long Covid and ME/CFS, and bringing complex chronic illnesses out of the shadows. United to fight for a brighter future. Download the program here.

Wednesday, 15th
Time (CEST) Session Type Topic Speaker
8:45am – 9:30am Opening Ceremony

Prof. Dr. Karl Lauterbach, MdB Federal Minister of Health of the Federal Republic of Germany,

Marie-Therese Burka, Chief Operations Officer/COO WE&ME Foundation, Vienna, Austria,

Chantal Britt, 2023 Viktor Award Winner and founder of Patient Organization Long Covid Switzerland,

Ed Yong, science journalist and Winner of 2021 Pulitzer Prize for Explanatory Reporting for a series on the COVID-19 pandemic,

Dr. Maria Van Kerkhove, Director at Epidemic & Pandemic Preparedness & Prevention at WHO, Geneva, Switzerland,

Jordon Steele-John, Member of Australian Greens, Senator for Western Australia, Perth, Australia,

Senator Dr. Stan Kutcher, Senator for Novia Scotia, Canada.


More speakers to be announced soon.

9:30am – 10:00am Session
Immunology of Long Covid

Prof. Daniel M. Altmann, Departement of Immunology and Inflammation, Imperial College, Faculty of Medicine, London, UK

10:00am – 10:30am Session
Design and preliminary results of a patient-driven "grassroots" clinical trial in a Belgian Long Covid cohort

Johan Van Weyenbergh, Laboratory of Clinical and Epidemiological Virology Department of Microbiology, Immunology and Transplantation Rega Institute for Medical Research, Leuven, Belgium

10:30am – 10:40am Break
10:40am – 11:10am Session
ME/CFS as part of the post-COVID spectrum

Prof. Dr. Carmen Scheibenbogen, Head of Immunodeficiency Outpatient Clinic Charité Berlin, Germany

11:10am – 11:40am Session
Skeletal muscle function and post-exertional malaise in patients with Long-COVID

Dr. Rob Wüst, Assistant-Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands

11:40am – 12:10pm Session
The role of microclots and platelet hyperactivation in LongCovid thrombotic endothelialitis

Prof. Dr. Resia Pretorius, Professor of Physiological Sciences at Stellenbosch University, South Africa

12:10pm – 12:40pm Session
Targeting the HDL Proteome for the Treatment of Post-COVID Syndrome

Prof. Dr. Bernhard Schieffer, Director University Heart Center Department of Cardiology, Angiology and Critical Care Medicine University Hospital, Marburg, Germany

12:40pm – 1:10pm Lunch Break
1:10pm – 1:35pm Patient Perspective
A Patient Scientist: Navigating Academia with Long Covid

Abigail Koppes, PhD, Associate Professor of Chemical Engineering, Northeastern University, Boston, USA

1:35pm – 2:00pm Patient Perspective
A former professional athlete discusses her experience of Long Covid, the role of exercise and participatory research methods.

Oonagh Cousins, Visiting Research Fellow, University of Oxford, Ambassador for the Charity Long Covid Support, Oxford, UK

2:00pm – 2:10pm Community Keynote
Wail of a Tale discusses how they became embedded with the LC community and shares stories of women from marginalized communities

Marty Pack, M.A. Founder, Executive Director and Creative Producer Wail of a Tale Productions, non-profit educational documentary film organization, Ohio, USA

2:10pm – 2:20pm Break
2:20pm – 2:50pm Session
From PASC Cardiovascular Involvement to Myoflame-19 RCT

Assoc. Prof. Dr. Valentina Puntmann, MD, PhD, FRCP, Associate Professor at the Institute of Experimental and Cardiovascular Imaging, University Hospital Frankfurt, Germany

2:50pm – 3:20pm Session
Pathogen persistence in Long Covid and ME/CFS: evidence and research considerations

Amy Proal, PhD, President/Chief Scientific Officer PolyBio Research Foundation, Boston, USA

3:20pm – 3:50pm Session
Immunomodulation in Long Covid: the REVERSE-LC study as a pathway to discovery

Prof. E. Wesley Ely, MD MPH, Professor of Medicine, Vanderbuilt University Medical Center, Co-Director of CIBS Center, Nashville, USA

3:50pm – 4:00pm Break
4:00pm – 4:30pm Session
Immunology of Post-Acute Infection Syndromes

Prof. Akiko Iwasaki, PhD, Sterling Professor of Immunobiology, Yale University
Investigator, HHMI, Connecticut, USA

4:30pm – 4:50pm Patient Led Research
Catalyzing change with patient/caregiver led research

Tess Falor, PhD, Renegade Research and RemissionBiome founder, Denver, USA
Isabel Ramirez-Burnett, NBC-HWC, AIP-C Renegade Research CEO & RemissionBiome project director, Rhode-Island, USA

4:50pm – 5:20pm Session
Focus on Treatments and a Cure using Old Ideas and New Ideas

Prof. Dr. Ron Davis, Professor of Biochem and Genetics at Standford, Director at Genome Tech Ctr, MECFS Collaboartive Research Ctr and OMF Scientific Advisory Board, Stanford, USA

5:20pm – 5:30pm Break
5:30pm – 6:00pm Session
A new frontier or the Same as Ever- Phenotyping based on responses to exertion (commonly) infection associated chronic conditions

Prof. Dr. Todd Davenport, Professor and Vice Chair, Departement of Physical Therapy at University of the Pacific in Stockton, USA

6:00pm – 6:30pm Session
The role of CPETS in determining the pathophysiology of Long Covid – the importance and need for objective caution

Prof. Dr. Mark Faghy, Professor of Clinical Exercise Science Biomedical and Clinical Research Theme University of Derby, Derby, UK

6:30pm – 6:45pm Patient Led Research
Impact of extended-course oral nirmatrelvir/ritonavir (Paxlovid) in established Long COVID: A patient-led case series

Alison Cohen, PhD, MPH, Assistant Professor, Epidemiology & Biostatistics University of California, San Francisco, USA and member of the Patient-Led Research Collaborative

Gina Assaf, co-founder and co-lead at Patient-Led Research Collaborative, Washington, USA

6:45pm – 7:00pm Session
Maintaining one's own identity despite PEM - How can psychotherapy support this?

Bettina Grande, Psychological psychotherapist practising in Heidelberg, Germany

7:00pm – 7:10pm Community Keynote
Occupational and Physical Therapy Perspective: Introductory Guide to Post-Exertional Malaise and Pacing for PEM

Clayton Powers, DPT, Doctor of Physical Therapy University of Utah, Salt Lake City, USA,

Amy Mooney, MS OTR/L, Occupational Therapist, Chicago, USA

7:10pm – 7:20pm Community Keynote
Unlocking wearable technology to measure and manage Long Covid

Harry Leeming, Founder of Visible, USA

7:20pm – 7:30pm Community Keynote
The Long Covid Toolkit. Empowering people with Long Covid and their caregivers with actionable knowledge and tools

Edo Plantinga, Project Manager and Founder of Long Covid Toolkit;

Joanneke van Der Nagel, MD, PhD, Epidemiologist, Psychiatrist, Researcher, Founder of Long Covid Toolkit

Thursday, 16th
Time (CEST) Session Type Topic Speaker
8:30am – 9:00am Session
Long Covid Phenotyping as an aid to successful treatments

Dr. Rae Duncan, Consultant Cardiologist and Long Covid Research Clinician, Newcastle Hospitals NHS Foundation Trust, UK

9:00am – 9:30am Session
New Zealand's Long Covid Landscape - from recognition to biomedical research - an overview

Anna Brooks, PhD, Senior Lecturer and Director at Auckland Cytometry, University of Auckland, New Zealand

9:30am – 10:00am Caregiver Perspective
Practical insight: Severe LC Kids, parent full time caregiver, diagnostic odyssey

Erin Godwin, Mother and Carer of a very severely ill child suffering from Long Covid

10:00am – 10:30am Session
Is there a stigma of Long Covid?

Prof. Dr. Georg Schomerus, Professor and Chair, Departement of Psychiatry and Psychotherapy, University of Leipzig, Germany

10:30am – 10:40am Community Keynote
Unmet needs and stigmatization of people suffering from long COVID after vaccination

Fiona Campbell, former nurse, Long COVID after vaccination, member of UK CV family/ Irish Covid Vaccine Clan, Ireland and UK

10:40am – 10:50am Community Keynote
Holism done right: addressing psychic trauma in LC and ME/CFS

Tom Molmans, MD, Psychiatrist, Long Covid and ME/CFS patient, research consultant for the Dutch Long Covid Foundation

10:50am – 11:00am Break
11:00am – 11:10am Community Keynote
A Longitudinal Perspective on ME/CFS

Jeff Lubell, parent and caregiver of a young adult with ME/CFS and other chronic conditions

11:10am – 11:40am Caregiver Perspective
The most severely affected - A caregiver's perspective

Dr. Sabine Hermisson, Mother and Carer of a very severly ill ME Patient and advocate, Vienna, Austria

11:40am – 12:10pm Session
Precision Medicine for Long Covid and ME/CFS: A New Understanding of the Disease Biology.

Sayoni Das, PhD, SVP of Bioinformatics at PrecisionLife, Oxford, UK

12:10pm – 12:50pm Lunch Break
12:50pm – 1:00pm Community Keynote
Is there a link between auto-immunity and Long COVID?

Dr. Jeroen den Dunnen, immunologist and Principal Investigator at Amsterdam University Medical Center, location AMC, University of Amsterdam, Netherlands

1:00pm – 1:30pm Session
Deformability Cytometry, from bench to bedside

Martin Kräter, PhD, Postdoctoral Research Fellow at Max Planck Institute for the Science of Light, Erlangen, Germany

1:30pm – 2:00pm Session
Vascular regulation disorder in Post COVID disease and ME/CFS

Dr. med Michael Kacik, Specialist in Internal Medicine and Angiology and Specialist in General Medicine, Münster, Germany

2:00pm – 2:30pm Session
PAIS-demystifying diagnosis, pathobiology and treatment

Dr. David Putrino, Director of Rehabilitation Innovation at Icahn School of Medicine at Mount Sinai, New York City, USA

2:30pm – 2:45pm Break
2:45pm – 3:15pm Short Panel
Insights from Clinical Practice. A discussion.

Dr. Michael Stingl, Specialist in Neurology, Vienna, Austria
Dr. Michael Kacik, Specialist in Internal Medicine and Angiology and Specialist in General Medicine, Münster, Germany

3:15pm – 3:45pm Session
Overlapping and differentiating biological features of ME/CFS and Long Covid

Bhupesh K. Prusty, PhD, Professor of Science, Riga Stradins University, Riga, Latvia

3:45pm – 4:15pm Patient Perspective
Living With Long Covid: A patient perspective

Pamela Bishop, PhD, Long Covid Patient, Tennessee, USA

4:15pm – 4:25pm Break
4:25pm – 4:45pm Session
Clinical and Research Efforts from the Stanford Long Covid Collaborative

Linda N. Geng, MD, PhD, Clinical Associate Professor at Stanford University and Co-Director Post-Acute COVID-19 Syndrome Center, California, USA

4:45pm – 5:00pm Patient Advocacy
"Wake up call"

Paul Hennessy, Long Covid Advocate, California, USA

5:00pm – 5:30pm Session
How Long Covid researchers are repeating the ME/CFS Biopsychosocial Playbook

David Tuller, Dr. Ph., Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley, USA

5:30pm – 5:45pm Break
5:45pm – 6:15pm Session
Sars-CoV-2 neuroinvasive potential and associated Neuroinflammation as possible mechanisms of underlying brain fog and cognitive dysfunction in Long Covid patients

Dr. Danielle Beckman, Neuroscientist, University of California, Davis, USA

6:15pm – 6:45pm Session
"Long Covid and the brain": a neuroimmunopsychiatry account

Dr. Daniel Martins, MD PhD, Senior Research Fellow Departement of Neuroimaging, Institute of Psychiatry, Psychology and Neuroscience, King’s College, London, UK

6:45pm – 7:15pm Session
The price paid when your immune system misfires

Dr. Anne Maitland, Director, Allergy & Immunology Services, Metrodora Institute, Asst. Professor, Icahn School of Medicine at Mt Sinai, New York, USA

7:15pm – 7:25pm Closing

Core Team UniteToFight